Pain Woman Takes Your Keys

Though I’ve already written a blog post about pain, I’m here writing about it again. Why? Because I’ve been thinking a lot about pain after recent emergency surgery to have my appendix removed. During the first week of my recovery, I spent a lot of time hanging out on the couch, either sleeping or reading. You’d think I would have treated myself to a few light reads, but, like I said, pain was (and is) very much on my mind. So the first book I picked up from the pile next to me was Pain Woman Takes Your Keys and Other Essays from A Nervous System by Sonya Huber.

In lyrical wit-filled prose, Huber writes about living with rheumatoid arthritis. She invites us into her pain, and all that goes with it: the anger, fatigue, and frustrations; the slump into poor self-image and self-critical talk, as in “Sometimes I berate myself for not being up to the level of other bodies … Sometimes I feel that in writing and revealing pain I am revealing wrongness (33, 85).” Though she writes to understand her own pain, she also writes for all of us. I mean, who has not suffered pain? More so, she writes for women in chronic pain. It is Huber’s sense of “wrongness” with which women in chronic pain are marked. Sadly, even centuries after women were labeled “hysterical” for expressing pain, not much has changed. When it comes to pain, women are still misunderstood.

Because chronic pain is not like a missing limb or a gaping wound, it’s what Huber calls “invisible suffering (25).” Thus, women are often forced to explain their pain to others, as she openly attests to in her letter to a feminist scholar (Yes, a woman!): “Thank you for making me articulate exactly what it means to live with a disease that is both painful and energy sapping … Thank you for making me detail the obstacles, which include the fact that any lengthy travel … will make me sick and thus destroy weeks of lucid work and family time. (117).”

As much as Huber’s book is about pain, she does bring relief to the page at just the right moments. For example, she shares with us how she reaches out to Facebook friends for stickers to decorate her cane, creating a “joyful explosion of adhesives that … brings more joy than an anonymous metal pole (96).”

Sometimes I wonder if pain ever gets tired of its role – always making us cranky and unpleasant to be around. Maybe the pain we experience is not always an indicator of illness or injury, and instead sometimes it’s trying to tell us, “I’m hurting too, and want you to have fun with me so we can both feel better.” Who knows?

What I know is how I feel about the pain scale. I dread it. Because I’m not good at making decisions, asking me to assign a number to my pain only creates additional pain. Instead of numbers, I prefer using real life language, the language of what it means to be a human being in pain. That’s why I’m on Huber’s side when she tells it to us straight: in place of a seven on the pain scale, she says, “Don’t fucking touch me (156).”

What about you? What “real life” language describes your pain?

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Rejection

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Remember that punched-in-the-gut feeling when the one guy (or girl) you had a crush on in high school went to the prom with your best friend instead of you? Or how about the first time you tried out for the soccer team and you didn’t make the cut? Rejection doesn’t feel very good. You might as well be a deflated balloon. That’s what it felt like for me when a literary journal recently rejected an essay of mine. I’ve received lots of rejections from journals, but this one, for no reason I can explain, hurt like a motherfucker. Because I’m generally a curious person, I can’t help but wonder why rejection causes humans so much emotional pain.

By nature, humans are social beings. Just as we need food and water to survive, we depend on others to feel a sense of belonging. To be rejected is like suffering from hunger and thirst. Because we have access to technology and other modern conveniences, we could manage to lead a solitary existence, though it would likely be a depressing one. To say “I’m in a lot of pain” after receiving a rejection letter from your top choice college, or after failing to land your dream job is not merely a figure of speech. It’s as real as physical pain. Through MRI studies, researchers have found that rejection stimulates many of the same areas of the brain involved with physical pain. As researcher Naomi Eisenberger describes, “As far as your brain is concerned, a broken heart is not so different from a broken arm.”

So, if we feel just as lousy when rejected as we do when experiencing physical pain, maybe the two cold be treated in the same way. That’s what researchers thought, and had a group of volunteer subjects take Tylenol for three weeks, while a second group of subjects were given a placebo. At the end of the study period, those who were given the Tylenol reported fewer episodes of hurt feelings. To confirm those reports, MRIs were taken of the Tylenol group, and showed less activity in the pain regions of the brain. Similar results have been found in real-life:  The same researchers conducted MRIs of individuals whose partners had recently ended their relationships, and when they were shown pictures of their ex-partners, the pain regions of the brain lit up.

Of course, while some individuals experience very few rejections over time (personally, I don’t know any of those people), others experience one rejection after another. And how each of us copes with rejection differs. Some are better at picking up and moving on; others crawl back into bed and bury themselves in the dark. (I’ll admit it: sometimes that’s where I end up, back in bed.) But, even though studies have proven that Tylenol can heal hurt feelings, pain serves us well. Since it’s an evolutionary advantage that we maintain social connections, though it means risking rejection, if we isolate ourselves, we’ll ultimately perish. So, the next time you receive a rejection of any kind, remember this: pain means you’re not as alone as you might think you are.

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Cranial Sacral Therapy

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Our bodies deserve to be treated with kindness. Right? If you are looking to do just that, whether you are living with post-traumatic stress disorder, a traumatic brain injury, chronic neck and back pain, migraines, or any other emotional or physical ailment, why not give cranial sacral therapy (CST) a try? Discovered in 1970 by osteopathic physician John E Upledger, CST is not as new-age as you might think.

I know, “cranial sacral” sounds nothing like new-age. You might cringe at the notion of someone messing with your neck and spinal column. But, with CST, there is no mess involved: back cracking, neck manipulation, muscle tugging. To help understand CST, I’ll interrupt here with a very brief lesson in Anatomy 101. More than most other parts of the body, the brain and spinal cord, which make up the central nervous system (CNS), influence the ability of the body to function properly. In turn, for the CNS to  function up to par, it relies heavily on a healthy craniosacral system: the membranes and fluid that surround, protect and nourish the brain, spinal cord, and the attached bones.

Since we endure stress every day – sitting at a desk for long hours, dragging a whining toddler through the grocery store, driving through bumper-to-bumper traffic – the body’s tissues tighten and create havoc in the craniosacral system. This can cause increased tension around the brain and spinal cord, interfering with the healthy functioning of the CNS, and even other systems it  interacts with.

With CST, the therapist uses her hands to evaluate the craniosacral system by gently feeling various parts of the body to assess for ease of motion, and for the flow of cerebrospinal fluid around the brain and spinal cord. Using soft-touch, she releases restrictions in the tissues, and mobilizes fluids around the spinal cord.

I’ve been curious about CST for a long time now, and, when I attended a workshop on CST at Vermont’s annual brain injury conference this past October, Kate Kennedy, the speaker, and veteran practitioner of the method, convinced me to consider it as an adjunct to alleviating my PTSD symptoms (hyper-vigilance, hyper-startle, nightmares) and a TBI (foggy-headedness, fatigue, poor concentration).

During the workshop, I learned, for CST to help heal our physical ailments, we need to let go of our emotions. Kate called them the “stuck places,” when she referred to the “emotions that take up space in our bodies” – in our muscles, tissues, bones. Vital to treating her clients, she asks them to talk about their individual traumas, as she feels for tight places, the places she senses being “over-charged.”  With the letting go of emotions, those tight areas also literarily let go.

Kate also reminded us that compensatory mechanisms influence the experience of the trauma. In other words, we possess layers upon layers of compensation before the trauma, and, for instance, how a migraine associated with a TBI heals depends a lot on what our past compensatory mechanisms were like. It’s not uncommon for people to hold onto the force of the injury – for example, neck tension.

The memory of trauma, pain, or any acute or chronic condition might very well be wrapped-up in your body. It’s true, our bodies hold our personal narratives. If we want to rid them of the upsetting narratives, or as Kate says, “The waste products of our central nervous system,” CST, with its gentle, listening approach can find those mucked-up places. I think of CST as empowering, as allowing you to gain access to your own body – the entire container of the self.

Are you ready to be empowered?

To find a CST therapist click here.

 

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The Pain Scale

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Where do you rate your migraine, back pain, abdominal pain? A two, a five, a ten?

A few weeks ago I went to see my physical therapist for hip pain. “On a scale of zero to ten, ten sending you to the emergency room, how bad is your pain?” she asked. Pain is universal, and, like most of us, I’ve been asked to choose a number from the pain scale time and again: in the weeks and months after my pelvis, foot, ribs, and lower back fractured in a car accident, when my bowel got all tied up in a knot, and when a cyst on my ovary ruptured.

In 1999, the Veterans Administration established pain as the fifth vital sign, requiring medical professionals to assess pain using the pain scale, a practice introduced by hospice in the 1970s. But how accurate is that scale? While one’s heart rate, blood pressure, and temperature can be objectively measured, pain is subjective. It’s based on perception, which is influenced by a whole host of factors: attitude, stress, culture, upbringing, age, gender, and more. One’s five may be another’s eight. And what about all the fractions in between two whole numbers? Couldn’t one’s pain be a five and two-thirds? What about chronic pain? Doesn’t that change our perception of overall pain? Are you more apt to assign an eight to, say, your recent foot pain because you’re sick and tired of the pain? Or are you more likely to give that toe, say, a three because you’ve become used to pain and can no longer decipher a three from a four or an eight?

I’ve never met anyone who said they’ve never felt physical pain. There are too many opportunities: paper cuts, stubbed toes, headaches, toothaches, back and neck aches. Why is there a zero on the pain scale anyway? It seems useless. As Eula Biss says in her essay “The Pain Scale,”  “Zero doesn’t behave like other numbers.” When we count, we don’t start with zero: “Zero, one, two, three.” Zero is merely a placeholder, a midway point between one and minus one, for instance.

Because I’m not good at making decisions, I’m not partial to the pain scale.

I think pain is best described with real life descriptors: throbbing, stabbing, crushing, needling, nauseating, a quadruple knot in the gut, the hottest part of a fire, a butcher knife to the toe. I want to tear apart my skin and crawl out of my body. I want to scream, scream, scream.

If you were asked to describe your pain, past or present, what would you say?

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