I spent this past weekend being human at the Kripalu Center for Yoga and Healing. That is, I spent this past weekend letting go and not giving a fuck with Jennifer Pastiloff. Yoga instructor, author, and founder of the online magazine The Manifest-Station, Jennifer is known for her workshop, On Being Human, where women from all over come together to dance, to sing out loud, to write whatever comes to the page, and to share their deepest pains and enduring dreams. If someone were to ask me to choose a single word to describe Jennifer, that word would be lovable. But she’s more than one thing. She is energy, a safe zone, a kick-ass hugger and hand-holder, a super-fun dance partner, a really good listener, an empath. The list could fill my bookshelf.

A friend of mine, who has attended Jennifer’s On Being Human workshop year after year at Kripalu, had told me all about her. I  had also read Jennifer’s posts on The Manifest-Station, followed her on social media, and devoured her book, On Being Human, A Memoir of Waking Up, Living Real, and Listening Hard. Much of what she had to share – her sense of shame and guilt, not feeling good enough, the need to be heard and told “I’ve got you” –  made me think she had written the book just for me. Which is why, after months of inventing one lame reason after the other for why I couldn’t go, I finally decided it was time to get off my scared ass and drive the three-and-a-half hours to Kripalu this past weekend. Why I was so afraid to take Jennifer’s On Being Human workshop I can’t explain. Wait, that’s a lie. The truth is this: The unknown scares the crap out of me sometimes. I had no idea what my experience would be like in Jennifer’s workshop. But we only know when we do, right? So I did. Yes, I thought I’d shit my pants on my way to Kripalu, wondering if I really had it in me to let go and be vulnerable in front of dozens of women I had never met.

I did not shit my pants, but I did sweat, a lot. If anything, the 95-degree heat made it easier to say, “Fuck you fear.” It took too much energy to think, I don’t belong here … I can’t dance … I can’t sing … I can’t, I can’t, I can’t. And the heat melted my body into a let-go puddle. So I had no choice but to dance like a dork, sing “Landslide” and “Don’t Stop Believin'” out of tune while doing Downward-Facing Dog, sing into an orange crayon-turned-microphone, play the air drums with a crayon, cry, and, as Jennifer says, “let snot fly.” It felt good, damn good.

At the end of the weekend, I left with a backpack full of what I call “Pastiloff Vitamins.” I take them everyday, with a large glass of “I am good enough, and don’t fucking forget that.”

I even have some samples of her vitamins for you:

“Ask. Don’t let ‘no’ stop you.”

“Daydream for five minutes every day.”

“Go ‘beauty hunting’. Make something beautiful.”

“Shoulds are assholes.”

“Everything has to be moment to moment, because that’s all we have.”

“Be a human thank you.”

“Say ‘yes’ to yourself.”

“Trust in the timing of your life.”

“Invite ease into your life.”

“Find joy for no reason.”

Read More

Chang and Eng Bunker. Born 1811. Thailand.

One might wonder how conjoined twins manage to survive – physiologically, mentally, and emotionally – after surgical separation. While some sets of conjoined twins, for medical reasons, cannot be separated, as in the somewhat famous case of Brittany and Abby Hensel, since 1987 several have been successfully separated. In some cases, conjoined twins, who are old enough to make thoughtful choices, have refused to be separated. Lupita and Carmen Andrade, who were expected to live only three days after they were born, not only defied the odds, but are now living together, literally. Both refused the option to be separated. According to the Deccan Chronicle, the twins say “it would be like cutting them in half.”

The decision to surgically separate conjoined twins is not one to be taken lightly. Inevitably, ethics comes into play. The most urgent question of all: What if one twin must be sacrificed? Do we allow one twin to die to save the other? Which twin’s life matters more? The questions are endless, questions I can’t imagine having to face if I were the parent of conjoined twins.

You might be wondering why I’m writing about conjoined twins, why I’m sharing with you this extremely rare and mind-blowing phenomenon. I’m sharing all this with you because I cared for a set of conjoined twins as a neonatal intensive care nurse. Though decades have passed since I held all *fourteen pounds of sweetness in my arms, fed them, changed their diapers, and held my breath as I waited for the then eight-month-old twins to come out of the hours-long surgery, I’m still awestruck. So what does a writer do with all that awe? Naturally, she writes about it. Which is exactly what I have done in my essay, “After,” published today at Intima, a literary Journal dedicated to promoting the theory and practice of Narrative Medicine. Created in 2010 by graduate students in the Master of Science program in Narrative Medicine at Columbia University, Intima has featured writers in the literary and medical fields from around the world.

Thank you for reading “After,” and feel free to follow-up with thoughts, questions, and, of course, your own awestruck moments.

*fourteen pounds is a guesstimate.

What is it like to live with a traumatic brain injury (TBI)? Maybe you feel as if you know longer know who you are. You might say that your identity has been “stripped” away, that your independence has been ripped from you. You feel utterly lost. In an interview with marketing consultant Angela Treat Lyon on Daring Dreamers Radio, this is exactly how Nathalie Kelly, a TBI survivor, describes how she felt in the days, months, and years after her sailboat toppled over during a storm on Lake Champlain in Vermont and smacked her in the head, leaving her bobbing in the cold water for forty minutes, until the coast guard arrived.

A brain injury advocate, writer, inspirational speaker, and board certified hypnotherapist, Nathalie speaks with eloquence and candor about her post-TBI road-blocks, set-backs, growth-spurts, and more. The motto of Daring Dreamers Radio is “to dare you to live free, inspired, and in constant delight.” And that is precisely what Nathalie does in the interview: She has come to understand that living with a TBI means learning to accept that you are “perfectly imperfect,” and, though our culture frowns upon anything less than perfection, she “dares” us to embrace it, to “embrace vulnerability,” to let yourself be the person you are now, to shed all expectations of others. “That’s living an authentic life,” Nathalie says.

To be inspired and awakened and free, I dare you to listen to Nathalie’s interview at Daring Dreamers Radio.

“Like many Mexican children, I cleaned the piedritas out of the uncooked beans before they went into the pot – my meal-prep duty to help my overwhelmed mother as she spun around in the kitchen. The process was simple, but time-consuming: a pile of beans was placed at the edge of the table. I’d hold a bowl just below the edge to drop in the clean pieces, and I’d pick off the debris – dried-up seeds, miniature twigs, tiny stones – all the undesirable, inedible stowaways. These would be set aside in a pile of their own, to be tossed at the conclusion of the cleaning.

“I refused to dispense with my pile of detritus too soon since these were the fruits of my labor, the nuggets minded out of the sack. They were much more interesting than the beans which huddled in the bowl, boring as clones.”

Award winning author, poet, fiction writer, memoirist, editor, professor of English, and more, Rigoberto González, who identifies himself as a gay Chicano, delivers that compelling narrative in the opening chapter of his book, autobiography of my hungers. The chapter, “allegory,” could not be better titled, for it’s the peidritas, or stones, that are emblematic of Rigoberto: He sees himself as the “debris,” the “undesirable,” “the dried-up seed.” But he refuses to “dispense” with himself, to give in, to give up. Through breath-halting poetry and affecting prose, each vignette in this slim yet lasting memoir portrays Rigoberto’s tumultuous journey through his childhood and beyond. His literal hunger growing up poor morphs into other kinds of hungers – hunger for love, and a lover, for acceptance and recognition, for an attractive body, and a healthy body, for quiet comfort, and for sustained empathy and understanding. Along the way, though, Rigoberto fills the “uninhabited rooms” of his existence with refreshing self-awareness and enduring vision.

Autobiography of my hungers will leave you sated, yet craving more – more of Rigoberto’s “gallery of tiny gems, colorful and edible as gumdrops.”

Every day, at least eight black people, three gay people, three Jewish, and one Latino person is a victim of a hate crime. A hate crime is defined as “crimes that manifest evidence of prejudice based on race, gender identity, religion, disability, sexual orientation, or ethnicity.”

In celebration of Martin Luther King Jr. Day, Ilyasah Al-Shabazz, a community organizer, social activist, and motivational speaker, brought a church full of wide-eyed listeners to a standing applause as she articulated the byproducts of injustice: “Hatred is a learned behavior we are teaching our children, and if we teach them to hate others, we teach them to hate themselves.” The daughter of Malcolm X, one of the most influential African Americans in history, Ilyasah made it known that her father was “misunderstood” when he was criticized for his violent approach to resolving racial injustice. In defense of his more violent protests, he would quote Shakespeare’s Hamlet: “‘To be, or not to be: that is the question: Whether ’tis nobler in the mind to suffer the slings and arrows of outrageous fortune, or to take arms against a sea of troubles, and by opposing end them?”’ As Ilyasah said, her father, “was reacting to the injustices around him.”

Ilyasah was only three-years-old when her father was assassinated in 1965. Her mother, Betty Shabbaz, an educator and civil rights advocate, was in her twenties and pregnant with twins, yet went on to raise six daughters. She eventually received a master’s degree, then a PhD. “She never accepted no or I can’t,” Ilyasah said about her mother. Ilyasah does not accept “no or I can’t” either, but as she declared, “Forget what they say about pulling yourself up by your own boot straps. We need one another.”

It’s true what Ilyasah said: “Just one life, just this one time, then we go elsewhere.”

But how do we mark the one life we have been given with “yes” and “I can,” rather than with “no and “I can’t”? Ilyasah’s answer: “Knowledge of historical information prepares us for leadership and instills in us self-respect, strength, compassion, reminds us of who we are at our core – to be or not to be, that is the essential question,” she said. In other words, we have the choice to act or not to act.

I’m happy to share with you that my essay, “A Faded Scar with Palpable Edges,” is now available to read in The Medical Literary Messenger, a web-based journal associated with Virginia Commonwealth University School of Medicine, and whose aim is “to promote humanism and the healing arts through prose, poetry, and photography.” The essay is about my struggle to overcome Anorexia Nervosa, an eating disorder affecting between one and five percent of female adolescents and young girls. The deeply contemplative and inspiring creative works published in the journal can’t help but make one pause to reflect on health, illness, and the human condition. So, while I hope you take a moment to read my essay, I also encourage you to read, and view, the other “voice[s] for the healing arts (Medical Literary Messenger).”

“A Faded Scar with Palpable Edges” was previously published in Humanthology, website devoted to real life chronicles connecting writers and readers to causes they embrace. Though I’m sad to share that Humanthology is no longer in publication, you can still access my essay, and others, on the website.